We are conducting a patient-oriented research project focused on improving self-management tools for individuals with Polycystic Ovary Syndrome (PCOS) in Alberta, guided by international evidence-based recommendations. Led by the University of Calgary, this initiative emphasizes the co-creation of inclusive, accessible, and reliable resources with active participation from individuals with lived PCOS experience. We are seeking Patient Partners or Patient Participants to join the Patient Advisory Council, where they will help shape research priorities, contribute to participant recruitment, assist in data analysis, and aid in disseminating findings.
Key project details:
- The project follows the Canadian Institutes of Health Research (CIHR) Strategy for Patient-Oriented Research (SPOR) framework.
- The advisory council will begin meeting monthly in January 2025, with a commitment of at least one year.
- Compensation is provided in alignment with the AbSPORU Patient Partner Appreciation Guidelines.
- Patient co-researchers will have opportunities for skill development through workshops.
For more information, please contact: [email protected].